Please continue to pray for baby T! May Christ make his presence
felt and known to Taylor and his mother and father.
We ask Our Lord to show them his mercy and love. Help them to stay
close to one another and strengthen them through these trials.
We ask this through Christ out Lord.
Here is the latest news from a member of our group. The email was sent out 4/22
Thank you all so much for your prayer for this precious little one.
Please continue to pray for my little cousin T and his parents!
He’s still not gaining weigh even after they inserted a G-tube (the
insertion site also became infected). Last night (4/20) was the most
challenging night in T’s young life. T’s in the Pediatric ICU,
and last night was experiencing all of the symptoms of congestive heart
failure. He slept a total of 5-7 minutes from 10PM into the until noon
the next day. His heart rate was averaging around 217 bpm, and he was
not able to maintain an oxygen saturation level of much more than 85%.
And his respiratory rate was around 80. He was screaming all night long,
and nothing that the nurses or doctors could do would calm him. His
chest x-ray showed a high level of fluid around his lungs. When dawn
broke, it was looking more and more like baby T would be getting his surgery
much sooner than we had expected. The Dr. examined baby T and decided that the first course of action for today would be to insert a central line in either his groin or neck. He would use the central line to administor a more aggressive combination of lasix and diuretics to help Baby T expel the fluid around his lungs. This turned out to be a very stressful experience. First, in order to insert the line into his neck, they would have to sedate him . Second, baby’s with down syndrome have “loose” skin which makes inserting an IV or drawing blood fairly difficult. In addition to the typical challenges with penetrating a vein or artery, Baby T has very thin veins at this young age. We watched the Dr trying to insert a line in his groin and neck for over an hour; and never get it in. The Dr. then decided that he
would insert an arterial line in his wrist. So, my cousin and I watched him try that for an hour with no luck. Then he decided that he would try the same in his groin. Poor baby T was getting poked everywhere, and it all seemed for not. Then, as the Dr. was trying to find the artery in baby T’s groin, he penetrated the vein. Luckily the Dr. had a central line kit available and instead of the arterial line, he ended up with the central line after all. It may sound like the Dr. didn’t know what he was doing; however, he is one of the most professional and caring doctors we have met in the pediatrics here at the hospital. With his central line, two IVs, and oral medication, baby T has been able to expel some of the fluid around his lungs. His stats are now within acceptable ranges and he appears to be feeling much better this evening. Your thoughts and prayers continue to help baby T deal with the many challenges that are thrown his way.
Please keep praying!!!
UPDATE!!! 5/27
Baby T is now home and recovering well with his family. Thank you God, all Glory and Honor are your’s forever and ever! 
Filed under: baby t
